Tag Archives: Margaret Block

Getting Through the Emotional 
and Physical Challenges of Breast Cancer

September 24, 2013 by
Photography by Bill Sitzmann

Even when it’s over, it’s not over, says one cancer survivor, who recently completed her treatment. The emotional turmoil and lingering fear of what’s going to happen next—Am I really cured? Will it come back?—continue to haunt many breast cancer survivors during and well beyond the treatment process.

The fear was so overwhelming for 39-year-old Melissa Holm that she decided to have a double mastectomy. This was despite her doctor’s assurance that the cancer cells were limited to her right breast and the chance of the cancer spreading to the other breast was very slim.

“I didn’t want to live with that fear for the rest of my life,” says Holm, a mother of two young girls and a boy. “I just wanted them to take everything and start from scratch. I know others who have had a lumpectomy, and they worry before every appointment. My diagnosis came after a year of watching. I didn’t want to continue that waiting game.”

“The number of women choosing double mastectomy over a lumpectomy has doubled from about 3 percent to nearly 6 percent over the last 10 years,” says Margaret Block, M.D., a medical oncologist at Nebraska Cancer Specialists. “We don’t really know why, but a lot of it may stem from the fear and anxiety following a cancer diagnosis.”

The fear and shock of a cancer diagnosis can be overwhelming, notes Patti Higginbotham, APRN, AOCN, nurse practitioner with the Alegent Creighton Health Breast Health Center. “The first thought of 90 percent of women is that they are going to die.”

Even after getting through the initial shock, women still have to endure another year or more of treatment, which may include surgery, chemotherapy, radiation therapy, and breast reconstructive surgery.

“The number of women choosing double mastectomy over a lumpectomy has doubled from about 3 percent to nearly 6 percent over the last 10 years.” – Margaret Block, M.D., medical oncologist, Nebraska Cancer Specialists

For Holm, dealing with the loss of her breasts and then her hair were two of the biggest emotional challenges during treatment. “You go through a period where you don’t even feel like a woman anymore,” she says.

Then, there was the constant fatigue, malaise, and missing out on her children’s events, like plays, basketball and volleyball games, and school meetings. “I slept a lot on the weekends following chemotherapy,” recalls Holm. “My children barely saw me the entire weekend. Thankfully, my husband was there to take charge of the kids, but still care for me. He was my rock.”

While a cancer diagnosis is never easy, there are several steps women can take to help ease the physical and emotional impact of a breast cancer diagnosis, cancer experts say.

One of the most important of these is the support of family and friends. “Women who try to do it alone usually don’t do as well physically or emotionally,” says Higginbotham. “Part of our makeup as women is that we need to talk about it. If you don’t have someone that you can lean on, we encourage women to seek support through a cancer support group, our social worker, nurse navigators, or other members of our staff. It’s also very important that you have a health care person you can connect with. If you don’t have that partnership, then maybe you have the wrong provider.”

“I couldn’t have made it without the support of family and friends,” notes Holm. “There is strength in numbers. They gave me strength through some of the most difficult times. I had to lean on so many people. I couldn’t have made it without all of their help.”

“Women who are informed and have the facts also do better and make better decisions,” says Block. “Faster is not always better. Once you get the diagnosis, you need to take some time to get through the initial shock and then ask questions and do some research. Otherwise, women tend to make decisions based on emotions rather than facts.”

“…we’ve found that physical activity will help with the emotional [and] the physical side effects.” – Patti Higginbotham, APRN, AOCN, nurse practitioner, Alegent Creighton Health Breast Health Center

“We encourage women to stay engaged throughout the entire process,” adds Higginbotham. “Ask a lot of questions, let us know if you are having side effects, ask what you can do for yourself, and seek support.”

Exercise, sleep, and good nutrition can also help with physical healing. “I remember the days when we suggested to women to take a leave of absence from work and to rest as much as they can,” says Higginbotham. “We’ve done a complete 360 since then. Now, we tell women to keep working if they want and to start exercising after surgery, as we’ve found that physical activity will help with the emotional [and] the physical side effects.”

Depression and anxiety are also “side effects” of breast cancer that should be discussed with your provider. “Women shouldn’t be afraid to seek additional help if they have a significant amount of depression and anxiety,” says Dr. Block.  “Sometimes, an anti-depressant can help a woman get through a really difficult time. While most women experience depression and anxiety following a cancer diagnosis, studies show that depression diminishes after treatment and recovery. Anxiety, however, can sometimes continue to linger.”

Life is getting back to normal for Holm. She completed breast reconstruction in late 2012 and says she is now focusing on turning her experience into a positive one by reaching out to others.

“I have volunteered to be a spokesperson for cancer survivors,” she says. “That regular interaction with other women and encouraging them to get mammograms or talking to women who are in the midst of treatment gives me strength.”

And she hopes to pass on some of that strength to others. “I’ve become a stronger person than I thought I was,” she says. “I have become more confident. I want to give other women hope—to let them know it isn’t easy, but you take one day at a time and count your blessings as you go.”

Young and Surviving Cancer

May 25, 2013 by
Photography by Bill Sitzmann

It was just eight weeks after Amberly Wagner-Connolly had given birth to twins when she received the devastating news that she had breast cancer. She was just 29.

“I knew that life as I knew it would never be the same,” she recalls. “I was so shocked. Why me? Why would I have these beautiful kids and then so soon after find this out?”

As it turns out, the experience has come to be one of the most positive things that has happened in Wagner-Connolly’s life. It also became the springboard that put her goals in motion.

“It has helped guide me in my life and my career,” she says. “It opened my eyes to how much worse things could be and inspired me to do more with my life. Through cancer, I realized that I wanted to go into public health where I can help others. I know I am a better mom, friend, teacher, nurse, wife—everything. All of my roles have been affected in a positive way because of [cancer].”

On March 1, Wagner-Connolly celebrated her four-year anniversary of being a cancer survivor, and while she has managed to make it a positive in her life, she acknowledges that it was also one of the most difficult and trying times in her life.

“It has helped guide me in my life and my career. It opened my eyes to how much worse things could be and inspired me to do more with my life.” – Amberly Wagner-Connolly, survivor

The number of young adults who are diagnosed with cancer is very low, usually less than 5 percent, depending on the cancer, says Margaret Block, M.D., a medical oncologist at Nebraska Cancer Specialists. But for those who do receive the disturbing news, it can be a very emotional and stressful journey.

Like many young cancer patients, Wagner-Connolly experienced the challenges and emotional turmoil common among people her age. She struggled with the shock of being diagnosed at such an early age; she feared not being around to see her children grow up; and she grew weary from juggling two tiny twins and a four-year-old daughter when she could barely take care of herself.

Her family and friends and people she didn’t even know became her biggest supporters. Her husband worked nights and was able to help as much as he could during the day. Her mother and mother-in-law also provided help when they could and were there for emergencies.

Her co-workers at The Nebraska Medical Center held a fundraiser for her. Several friends of her sister who work at Lincoln Financial Group also organized a fundraiser/auction and raised more than $6,000 to help her with her medical bills.

This touched Wagner-Connolly greatly and was a turning point that helped her keep fighting. “It made me see the good in the world,” she says. “When complete strangers reached out to help me, I became determined that I had to do something with my life to make an impact like they had for me.”

“The number of young adults who are diagnosed with cancer is very low, usually less than 5 percent, depending on the cancer.” – Margaret Block, M.D., medical oncologist with Nebraska Cancer Specialists

Determined to not let her surgery and chemotherapy treatment slow her down, Wagner-Connolly was able to continue her master’s studies, finishing on her target date. She also kept a challenging work schedule as a nurse at The Nebraska Medical Center.

Being able to maintain some control over other parts of her life was important to her mental well-being. There were days during her six-month chemotherapy regimen when she felt as if she couldn’t go on. “I just had to take it day by day,” she recalls. “I did a lot of reality checks.”

Having goals—such as seeing her children grow up, completing her master’s degree, and wanting to live to make a difference in the world—fueled her will to keep fighting.

“Amberly did an amazing job,” says Peggy Jarrell, LCSW, OSW-C, a licensed clinical social worker and a certified oncology social worker at Nebraska Methodist Hospital, who worked with her during her treatment. “Motherhood can be stressful enough…put cancer on top of that, and you have a lot to deal with. [She] was able to maintain her own and still stay active in the outside world.”

Jarrell says it’s very important for cancer patients to establish a good support network of people and friends who can help them through this period. She also recommends having a designated support person who can accompany them at appointments and act as their second set of ears. Many hospitals now provide nurse navigators to help patients “navigate” the health care system.

Stacy Patzloff, RN, BSN, a certified oncology nurse navigator at Alegent Creighton Health, says nurse navigators work closely with the patient and the cancer support team to make sure everything is coordinated. They’re there to attend appointments with them and to act as a support person who is available 24/7.

“Motherhood can be stressful enough…put cancer on top of that, and you have a lot to deal with.” – Peggy Jarrell, licensed clinical social worker and certified oncology social worker with Nebraska Methodist Hospital

Support is key, agrees Dr. Block, whether it’s family, friends, a support group, or seeking the help of a psychologist or psychiatrist. Exercise can also be a good thing and may help you get through chemotherapy with less fatigue, she notes.

Other tips that may help young patients get through treatment and recovery include:

  • Don’t be afraid to ask for help from others.
  • Take time for yourself if you’re having a bad day.
  • Eat a healthy diet. Seek the nutrition advice of dietitians on staff at the hospital where you are receiving treatment.
  • Take care of your physical well-being. Programs like Alegent Creighton Health’s Image Recovery program provide cancer patients with wigs and helps them deal with hair, nail, and skin problems that are unique to cancer patients.

Today, Wagner-Connolly is very active in a number of projects to help other young victims of cancer. She started the group Survivors Raising Kids for young parents who need help with childcare during treatment and recovery. She is on the board of Camp Kesem for kids who have had a parent with cancer. She is also a nursing instructor at Clarkson College where she teaches public health and is pursuing a doctorate in global health.

“I know how lucky I am,” she says. “I want to make a difference in this world. No one should have to face cancer and certainly not a young mom.”

And for those who do, Wagner-Connolly is committed to easing that journey.