The way Terry Currey looks at it, Parkinson’s disease is a battle of the mind versus the brain.
Diagnosed with Parkinson’s disease in 2009, Currey describes his brain as an antagonist that controls his body. The protagonist is his mind, which he applies with persistent determination and will power to overcome the malevolent part of his brain.
Currey knows that in the end, his brain will be the victor. “But it’s not whether you win or lose,” he says, “it’s how you play the game.”
Parkinson’s disease is the second most common neurodegenerative disease—Alzheimer’s disease is the first—and usually occurs in individuals after age 60. The disease typically advances over a period of many years and affects movement, muscle control, and balance. Symptoms include a tremor, slow movement, loss of balance, and stiffness of the limbs.
“When the disease reaches a moderate stage, the motor [skills] problems become more pronounced, medications may begin to lose their effectiveness, and non-motor symptoms begin to develop, such as swallowing issues, speech and sleep problems, low blood pressure, mood and memory issues,” says Dr. Danish Bhatti, neurologist and co-director of the Parkinson’s Disease Clinic at Nebraska Medicine.
Dr. John Bertoni, co-director of the Parkinson’s Clinic, is Currey’s physician. “The needs for Parkinson’s patients are very diverse and become more complex as the disease progresses.”
Early diagnosis is the key to beginning proper treatment and helping manage progression of the disease, Dr. Bhatti says. Most people with Parkinson’s can get significant control of their symptoms with medications and a combination of other therapies, including occupational therapy, speech therapy, nutrition counseling, support groups, and regular exercise.
“The benefits of exercise early on, and throughout the disease process, is significant,” he says. “People who are independent after 10 years are the ones who were very active early in the disease. The more active you are, the less likely you are to have severe symptoms.”
Currey has been fighting the disease with an arsenal of tools that include medications, exercise, diet, and mind games. He says exercise has been critical in helping him stay active and keeping his muscle memory in place. He regularly uses his treadmill or elliptical, lifts weights, and participates in other activities like fishing, camping, mowing the lawn, snowblowing during winter, reading, and writing. Each is an important element in staying in the battle, he says.
“Some days it’s not only hard to move, but to want to move,” he says. “You have to have a mission. You have to set your mind to whatever it is you want to accomplish and not let the enemy win.”
To help others with the battle, Currey recently wrote a book, titled Neural Combat: Strategies and Tactics for your War with Parkinson’s Disease, available on Amazon. There were several goals Currey says he wanted to achieve with his book, such as helping individuals newly diagnosed with Parkinson’s to overcome their fear of the disease; to explain what is happening to them medically; and to assist them in developing tools to cope with the symptoms.
“With Parkinson’s disease, you go through the stages of grief and denial, and finally resignation and acceptance,” Currey says. “It took me a while to accept it, but once I came to that realization, I decided that I’m in it to battle this to the end for as long as I have my cognitive abilities.”
Visit pdf.org for more infomation.